Oh my princess Breeann. Her talking is awesome! She's smart too, but definitely not as knowledge hungry as Ayden. Bree is our funny one (as in she's got a good sense of humor) and our tease. She is very much the type to slow down and enjoy life. I admit, drives me nuts! When it takes her forever to eat, or to do a simple task!!! Something I know I've got to let her do, and I need to learn to deal with... but it's so hard!! Anyway~ She gave us a glimpse of hope with potty training for a couple days, but decided she didn't want to. We're not pushing it either... she's gotta be able to control SOMETHING in her life, right? As far as her eating... it's going okay overall. She's very scared to try new things... and she doesn't like to chew (although she can chew just fine now), but we're all getting there. We can normally get her to eat at least a little something 3-4 times a day. She's getting 9 ounces of formula a day too. She's now on 12 hours of IV every night!! I think that's amazing, considering this time 2 years ago she was on 22 hours! She's not quite gaining weight like her dietitian would like, but Bree's now at the age that they don't gain much away. She's at 26 pounds... so she's heavier then Ayden! All of Bree's blood work is within normal range now... including her liver function!! (which is awesome since it was elevated... her IV fluids do that) In fact, they're slowing cutting back, taking things out of her IV solution... which is a good sign. Looking at Bree, you'd think she was a normal 2 year old girl. Until you look close and see her IV, feeding tube, and bruised looking right side neck area (That's from new artery routes forming to make up for the one blocked off). She has set AMAZING records for herself... her last true line infection was end of Apr.! So coming up on a year! And her last hospital admission was Halloween... she was discharged the day before. Luckily, she hasn't been as sick as we were expecting her to be this winter. She got hit really hard Christmas Eve, ended up taking her to the ER with a 102 fever... but they never found anything and she was better in like 4 or so days. She's still very much allergic to milk, but it's getting better. She can tolerate it cooked in things... and it's looking like she can handle it processed, like cheese. But she cannot tolerate it, if much isn't done to it, like yogurt. We haven't played with her egg or peanut allergy. She's loving nursery and church. She's generally a happy, loving girl!
Think that about sums us up! :o) hopefully i'll get better at keeping up this blog... feel free to bug me if I go a while without a post :oP Love you all and hope you all are doing well too!!!